We now know how to preserve the status quo, to give Alon all the treatments that preserve and prolong his life so that his condition would not deteriorate.
Alon’s medical treatments
Close medical guidance from experts on the "Duchenne" disease.(MGN Clinic – A Metabolic , Genetic, and Neurological clinic)
Relief and preservation of the status quo through alternative medicine (nutrition, acupuncture) . Every week,
Alon recieves acupuncture treatment that aims to preserve his current condition so that it strengthens his body and ensures that it does not deteriorate.Alon needs daily physical therapy treatment to extend and stretch his muscles.
Alon does hydrotherapy - swimming improves his lung functionality.He participates in research in the United States.
He is part of a unique experiment of only six children because his disease was diagnosed at a very young age. The experiment is called EXON SKIPPING and it is based out of Australia. The uniqueness of the experient is to reproduce proteins and restore muscle functionality for Alon.
It is important that you know:
Healthcare providers and supplemental insurance do not cover treatments for this disease.Israel's public health insurance does not recognize young children diagnosed with "Duchenne" and does not provide subsidies for treatments.
The "Duchenne" disease does not appear in the list of diseases eligible for assistance by the Ministry of Education.
Alon needs a personal assistant to accompany the daily activities in school, watch and prevent falls or injuries that may greatly worsen his health condition.
The "Life for Alon" foundation is setting the goal for providing Alon with expensive life-prolonging treatments that we cannot afford, finding a cure, as well as participation in research and development for him.
The estimated cost per year is about $100,000 We need your heartfelt contributions to extend and save Alon’s life!Research has already begun and we believe in it whole-heartedly!
Please help us exhaust all options to save Alon’s life!